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KMID : 0806120030330070875
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대한간호학회지
2003 Volume.33 No. 7 p.875 ~ p.884
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Psychosocial Adjustment of Young Adult to Hemophilia: Living like a Normal Person
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이명선/Yi MS
김원옥/강현숙/Kim WO/Kang HS
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Abstract
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Purpose: To explore how young adults in their 20s adjust to hemophilia.
Method: Grounded theory method guided the data collection and analysis. A purposeful sample of 15 young adults with hemophilia participated during the period of 2000-2001. The data were collected by semi-structured individual interviews, focus group interviews, and participant observations. All interviews were audio taped and transcribed verbatim. Constant comparative analysis was employed to analyze the data.
Result: "Living like a normal person" emerged as the basic social-psychological process. Two dimensions of the self were identified: normal self and abnormal self. "Living like a normal person" means conscious effort to focus on normal self rather than abnormal self. Five subcategories were identified : 1) pretending as if he is not
hemophiliac; 2) relieving the burden; 3) maintaining best physical conditions; 4) becoming independent; and 5) reconciliating with their mothers.
Conclusion: The results of this study indicate that young adults with hemophilia strive for living a life as a normal person. But there is a question whether it is good for their ultimate quality of life. The results indicate that our society needs to be more tolerant to differences that hemophiliacs have.
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